Tel: 07903 382013
It is important that children & teens have all the information and support that you need when you are going to have a life-changing operation, such as the Mitrofanoff procedure. So it is important you understand what is going to happen both short and long term.
Gaining information of what the operation entails, as well as what to expect from the operation, will help you understand the reason as to why it is needed.
The Consultant will be your initial point of contact so taking a diary to appointments will help by keeping a record of questions to be asked as well as the answers that are given. Remember to ask as many questions that you want to ask however trivial you may feel they are.
The Paediatric Urology Nurse Specialist (PUNS) works closely with the consultant and will be able to answer any questions that you may have missed with the consultant.
Support groups are available to provide information that is usually non-professional and more of experienced based. They generally allow peer to peer contact which provides for emotional support. See below how Mitrofanoff Support can provide support.
The Internet is a great way of gathering information, however care has to be taken as some information may be irrelevant and may cause you to worry unnecessarily.
You are likely to have lots of questions prior to having a Mitrofanoff. Below are a few key questions that you might want to ask the healthcare professional, for more questions please refer to our FAQS page.
Mitrofanoff Support aims to help you feel supported by:
Medical information for children & teens click here http://www.mitrofanoffsupport.org.uk/learn-about-the-mitrofanoff-procedure
For more medical information, the operation process and much more click here http://www.mitrofanoffsupport.org.uk/medical-information/