Mitrofanoff Support was founded in early 2010 by Kyla Rogers and was the first support group for the Mitrofanoff procedure globally. Kyla had the Mitrofanoff procedure in 1998 and wanted to provide peer-to-peer support to others.
On 2nd February 2012 Mitrofanoff Support became a Registered Charity in England and Wales. The charity provides information, reassurance, emotional support and networking. This enables like-minded people to gain support and friendships with people who are going through the same or similar experiences. Mitrofanoff Support’s Board Members, Trustees, Advocates and Volunteers donate their time and skills to oversee the aims and objectives of the Charity.
Mitrofanoff Support works with Healthcare Professionals and Hospital Trusts to help improve the education of what it is like to live with a Mitrofanoff from a patients’ perspective. Should you like a representative of Mitrofanoff Support to come and give a presentation, please contact the Charity.