February 6, 2020

1) Sign up for free membership via the link on our homepage – the details you provide on our membership sign-up form helps guide the services we provide, such as the location of events and topics we address on our website and in the journal. Please fill out the form as...

December 5, 2019

General Symptoms

  • Offensive/strong smelling urine

  • Cloudy urine

  • Temperature 

  • General malaise

  • Fever

  • Rigors (i.e a chill, usually with shivering, as at the onset of high fever and chills)

  • Blood in urine

  • Pain in kidney/s

  • Nausea and...

December 2, 2019

1) Add your personal information to your phone:

For iPhone:

  • Open Health App and tap Medical ID > Edit.

  • Enter your emergency contacts and health information like your birth date, height, and blood type.

  • Turn on Show When Locked to make your Medical ID a...

October 14, 2019

On Saturday 28 September, Birmingham hosted what has gone down in the record books as our biggest and best ever Patient Education Day. Although we had been close to Birmingham before, we had not actually visited England’s second largest city and our choice was vindicat...

August 19, 2019

Andrew and Sean raised a tremendous £2,768 for Mitrofanoff Support by completing the epic Ride London 100 cycling event on Sunday 4 August 2019. In an exclusive interview they reveal the inside story of their 100 miles of pain:

1) What do you like about cycling?


July 16, 2019

Guest Blog:

Dr. Ron Daniels

CEO and Founder

The UK Sepsis Trust

The UK Sepsis Trust estimates that sepsis may kill as many as six million people globally each year. We know that sepsis goes unrecognised by members of the public, and that they present to healthcare too late...

June 27, 2019

Mitrofanoff Support recently worked with Mediaplanet on the 2019 Health Awareness: Bladder and Bowel campaign. A printed publication was enclosed within every copy of the Guardian newspaper and the content is available online at www.healthawareness.co.uk.

The campaign f...

May 20, 2019

These questions were presented at the London Patient Education Day on 23 March 2019 by Renee Holmes (Chairperson) and answered by Dan Wood (Patron, and Consultant Urologist Surgeon, UCLH) and Sharon Fillingham (Adult Nurse Advisor and Clinical Nurse Specialist, UCLH).


Part of the ethos of our charity is to collaborate closely with healthcare professionals (HCPs). We see the support package for a patient as a partnership between specialist doctors and nurses, family and friends, and the Mitrofanoff Support community.

We have recently...

January 11, 2019

Ten year old Olly has had his Mitrofanoff since he was just three years old. He is extremely independent and manages his care both at school and at home.  He is my very own superhero and, in my opinion, the bravest person in the world! I know this because I’m lucky eno...

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