Patron

Claire Taylor is consultant urological Surgeon at Guy’s and St Tomas’ hospital in London specialising in functional, reconstructive and Adolescent urology. During her training she spent time with Dan Wood & Christopher Woodhouse at UCLH as well as a Fellowship in the urology department at Great Ormond Street Hospital learning her craft. Claire is passionate about delivering holistic care to those with congenital, neurological or childhood issues with their bladder through adolescence and adulthood. Claire is honoured to take over as Patron to Mitrofanoff Support, to help inform and support those who undergo a Mitrofanoff reconstruction as well as their friends and families.

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International Patron

 

Dan Wood is a Professor of Urology based at Children’s Hospital Colorado and working across the Anschutz Medical Campus. He has previously worked at University College London Hospitals and an

honorary consultant at Great Ormond Street Hospital. His major interest and work is in adolescent and reconstructive urology – with an expertise in adult complex reconstruction, surgical aspects of

bladder exstrophy, cloacal exstrophy, posterior urethral valves, disorders of sex development and neuropathic bladder. 

He qualified from St Bartholomew’s Medical College (London, UK) in 1994, did a PhD, at UCL, looking at smooth muscle physiology and completed his higher training at the Institute of Urology where he was first appointed as a consultant in 2008. 

He maintains an active research interest and is widely published, he is a senior editor of the Journal of Paediatric Urology and has been an invited speaker as visiting professor across the US and Europe and at many international meetings.

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Honorary Roles

Professor Paul Mitrofanoff was a Paediatric Consultant Urologist and he created the Mitrofanoff procedure in 1976. The procedure was developed to help give individuals a better quality of life when suffering with incontinence and incomplete bladder emptying.

Paul retired in 2000 and enjoys his retirement with his family living just outside Paris.

In February 2013 after he had been surfing the internet, Paul contacted us to congratulate us on launching the Charity, representing the interests of those living with a Mitrofanoff and for raising more awareness of the procedure. We were thrilled when Paul attended a Patient Education Day in London on 28th September 2013 and he was pleased to meet everyone:

Paul attended a Patient Education Day in London on 28th September 2013 “I am very impressed by the wonderful day that was organised. I am very happy to have been there to see the warm ties between all participants and hopefully given them the pleasure to meet myself! The book of messages is especially precious to me and I am very proud of all the kind words. Thank you.”  

Professor Christopher Woodhouse was Consultant Urologist at The Royal Marsden Hospital, specialising in Urinary Tract Cancer, Reconstructive and Congenital Malformations and was the first urologist to perform the Mitrofanoff in the UK in the early 1980s. He was appointed Fellow, Royal College of Surgeons in 1975, was a senior registrar at the Institute of Urology from 1977–1981 and a senior lecturer between 1981–1997. The Institute of Urology was subsumed into University College London where he was Clinical Director of Urology from 2001, becoming Professor of Adolescent Urology in 2006 and Emeritus Professor after his retirement in 2011.

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Adult Nurse Advisor

 

Sharon Fillingham

Sharon Fillingham is a Clinical Nurse Specialist and has many years of experience and expertise within the Urology and Urinary Diversions. Sharon gives lectures and holds training days to teach other medical professionals across Europe on the Mitrofanoff procedure. Sharon is also qualified and works as a Psychosexual Therapist.

Sharon has worked closely with Mitrofanoff Support since its launch in 2010, and plays a vital role at our Patient Education Days and Mitrofanoff Online Networking Sessions, giving advice and answering questions about managing a Mitrofanoff on a day-to-day basis.

 

If you have any questions for Sharon, please email info@mitrofanoffsupport.org.uk

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Children's Nurse Advisors

Angela Downer & Louiza Dale

Angela and Louiza are both Paediatric Urology Nurse Specialists and between them they have many years experience and expertise within Urology and Urinary Diversions.

Angela and Louiza are responsible for educating children and their families before a decision is made to form a Mitrofanoff. They both support the children through and after their procedure.

Mitrofanoff Support is very lucky to have Angela and Louiza as its Children’s Nurse Advisors and on its management board. They are also involved in patient education days to support children and their families.

If you have any questions for Angela or Louiza, please email info@mitrofanoffsupport.org.uk

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