Staff and Volunteers
Tania Levett
Whilst not having a Mitrofanoff herself, one of Tania’s closest friends does and she became aware of the Charity from her friend. Tania had previously worked in the insurance and banking industries, before taking time off to focus on her family and becoming actively involved in various school PTA and fundraising activities. When Tania learned the Charity was looking for a new Office Manager, she was excited to accept the role and a new challenge; Tania has been bringing her organisational skills and customer-focussed attitude to the Office Manager role since November 2020. She also set up a Foodbank with some friends and continues to volunteer there each week.
Ken Edwards
Ken Edwards joined Mitrofanoff Support at its inception in 2010 and helped at many events before becoming Chairman in 2013. In 2015 he stood down from that role due to other commitments and now oversees Partnership Liaison, dealing with our sponsors and other national bodies. He is a passionate voice about the Mitrofanoff procedure and our charity.
Ken was born and lives in Salisbury and is Chairman of the Wessex Stoma Support Group. He is heavily involved in the local area and is also involved in the National Campaign for Access to Disabled Toilets and Signage.
Jim Kenison
Jim was first diagnosed with bladder cancer in 2008 and after an operation to remove the tumour, the chemotherapy and radiotherapy treatment was initially successful. However, the cancer returned in 2012 and his bladder was removed and replaced with a new one constructed from a piece of bowel and a Mitrofanoff urinary diversion. Jim is fortunate that the procedure has been successful and his lifestyle has changed very little. Since he fully retired in 2019, Jim particularly enjoys joining his cycling group to explore the Surrey countryside.
Jim and his wife Lynda were given a huge amount of support by Mitrofanoff Support, both before and after Jim’s operation. Jim has been a volunteer with the charity since 2013, helping at events and offering support to people who either have or are thinking about having the Mitrofanoff procedure.
