Our greatest asset is you! We have over 600 members spread nationwide, and over 1,200 people from the UK and further afield in our closed Facebook group. Despite the Mitrofanoff procedure being rare, you are not alone.

This community comes together at events such as our Patient Education Days and  Summer Ball, but every day members are supporting each other online and in person. 

Data privacy regulations prevent us from listing names and addresses of our members, but we can contact those close to you to see if they would be willing to share their contact details.

If you would like to meet up with members in your area please email info@mitrofanoffsupport.org.uk and we will do our best to put you in contact.