Medical Professionals

The purpose of the Mitrofanoff procedure is to form a channel between the bladder and the wall of the abdomen to allow intermittent self-catheterisation i.e. drainage of the bladder. The Mitrofanoff is preferentially made from the appendix which is mobilised on its blood supply, or a piece of small bowel. It can also be achieved with a fallopian tube. One end is tunnelled into the wall of the bladder to create a valve that acts as a continent mechanism. The other end is passed through an opening in the abdominal wall to form a small stoma through which a catheter can pass to empty the bladder 4-6 times a day.

How Mitrofanoff Support can help healthcare professionals and patients

 

Mitrofanoff Support aims to help you and your patients feel supported by:

  • Providing presentations from a patients' perspective and how they cope post-operatively.

  • Suggesting some questions that patients might want to ask the doctors before having surgery.

  • Putting patients in touch with other patients, parents, carers or family members. This can be beneficial both before the procedure, so patients can ask questions about other people’s experiences of having a Mitrofanoff and afterwards, as the patient learns to use the Mitrofanoff, when they may want to “compare notes” with others who have been through a similar situation.

  • Forum and social media where patients can interact with others and share experiences.

  • Patient Education Days, where both patients and healthcare professionals can come along and learn more about the Mitrofanoff procedure from specialist health professionals, meet other patients, parents, carers, family members, people living with a Mitrofanoff and see the different types of catheters that are available. Children are welcome at these events.

  • Letting patients know they are not alone.

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Mitrofanoff Support does not provide individual medical advice. Always consult your specialist team.  All material © Mitrofanoff Support 2008-2018

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