Wellbeing

The Mitrofanoff procedure can be a long-term solution to enable patients to maintain a normal quality of life and dignity.

This type of surgery can have an impact on some individuals' psychological welfare. This can cause problems with relationships among families and friends, and with self-esteem and confidence and sometimes intimacy. Some children struggle academically due to loss of schooling for hospital appointments.

It is important to identify when you need a little more help. Mitrofanoff Support has one Adult Nurse Advisor who is also a psychosexual therapist and two Children’s Nurse Advisors. If you need to contact Sharon, Angela or Louiza email: info@mitrofanoffsupport.org.uk

Mitrofanoff Support aims to provide help to improve patients' psychological and social wellbeing and so enable them to have better personal and intimate relationships. 

Here are some points to help maintain or improve your wellbeing: 

  • It is very important to have regular contact with family and friends, talking either on the phone or in person, with people that make you feel happy, will help keep your mind stimulated.

  • Exercise is not only good for the body, it is also good for the mind. What type of exercise you decide to do is not important as long as you gain pleasure in what you are doing.

  • Learning new skills helps keep your mind stimulated, it will give you a sense of achievement and confidence.

  • A gesture or gift to a stranger or a friend. You might give someone a compliment to make them feel good or even just a smile to someone when you are out and about. This can help with your confidence as you have made someone else happy.

  • It is important to be aware of your feelings, thoughts and body language. This can help you to look at your feelings and emotions and change the way you approach things.

 

Telling Others

You may tell others as much or as little as you want them to know about your medical condition and Mitrofanoff procedure. Telling others is not something you have to do especially if you do not feel comfortable in doing so.

Do not feel obliged to tell others. Only you know what is right for you.

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Mitrofanoff Support does not provide individual medical advice. Always consult your specialist team.  All material © Mitrofanoff Support 2008-2018

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