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London - 21 Sep 2024

Mitrofanoff Support Day

Join us for inspiring stories from Mitrofanoffers, just like you!

Have the opportunity to speak to our Patron Surgeon Claire Taylor, our Adult & Paediatric Nurses, Trustees & our amazingly supportive community.

**Venue & full details provided once registered**

If you aren't able to make it to London then why not join one of our MONs sessions (online):

MONs 17:  8 Jul 2024

MONs 18:  5 Oct 2024

MONs 19:  7 Dec 2024

Mitrofanoff Support provides information, emotional support, reassurance and networking.

Urology problems in general and bladder complications, in particular, can be difficult to discuss. If your medical team have proposed a Mitrofanoff as a medical solution to you, your child or a member of your family then this website is an ideal source of information about the procedure itself and the important aftercare which enables this continent urinary diversion to work well.

 

We work with the whole team including you, your family, product suppliers, healthcare professionals and hospital trusts; to improve education and awareness of what it is like to live with a Mitrofanoff to ensure our needs are met. 

 

This wider team enables Mitrofanoff Support to offer information and reassurance to individuals (and the people closest to them) who may be about to have, or already have, a Mitrofanoff.

 

The purpose of the operation is to restore confidence and convenience to those experiencing incontinence and other urological issues.

 

The procedure provides a catheterisable continent channel as an alternative to the native urethra. It is a long-term solution enabling patients to maintain a normal quality of life and may be an option for those with congenital malformations, multiple sclerosis, spinal cord injuries, or bladder cancer etc.

 

Our objective is to provide Mitrofanoff lifestyle information which enables the recipient of the Mitrofanoff to take control and look forward to a positive future.

 

What is a Mitrofanoff?

  • a catheterisable continent channel which accesses a native/augmented or neo bladder

  • urine is then able to flow back up through the catheter thereby emptying the bladder of urine i.e. intermittent self-catherisation.

How is it used?

  • a catheter (a long tube) is passed through the Mitrofanoff channel into the bladder

Where is the opening for the channel sited?

  • lower abdomen or inside the umbilicus

Catheter, mitrofanoff channel, and Neobladder

A video of the presentations at a recent Patient Education Day (PED) with an introduction from the Chair of Trustees, Renee Holmes

Animated video explaining everything about Clam Cystoplasty and the Mitrofanoff channel creation

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