Mitrofanoff Support provides information, emotional support, reassurance and networking.

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Urology problems in general and bladder complications, in particular, can be difficult to discuss. If your medical team have proposed a Mitrofanoff as a medical solution to you, your child or a member of your family then this website is an ideal source of information about the procedure itself and the important aftercare which enables this continent urinary diversion to work well.

We work with the whole team including you, your family, product suppliers, healthcare professionals and hospital trusts; to improve education and awareness of what it is like to live with a Mitrofanoff to ensure our needs are met. 

This wider team enables Mitrofanoff Support to offer information and reassurance to individuals (and the people closest to them) who may be about to have, or already have, a Mitrofanoff.

The purpose of the operation is to restore confidence and convenience to those experiencing incontinence and other urological issues.

The procedure provides a catheterisable continent channel as an alternative to the native urethra. It is a long-term solution enabling patients to maintain a normal quality of life and may be an option for those with congenital malformations, multiple sclerosis, spinal cord injuries, or bladder cancer etc.

Our objective is to provide Mitrofanoff lifestyle information which enables the recipient of the Mitrofanoff to take control and look forward to a positive future.

A video of the presentations at a recent Patient Education Day (PED) with an introduction from the Chair of Trustees, Renee Holmes

Animated video explaining everything about Clam Cystoplasty and the Mitrofanoff channel creation